I originally started this blog a few years ago to chronicle Noah's daily struggles with autism. It was a dark time in my life - a time when I felt that things would never get better. It was a time when I felt that all my hopes and dreams for my son and for our family had died. In my efforts to help Noah recover from autism, I began a journey that inadvertently led me to rediscover myself. I learned how to laugh again. How to dream again. How to live again. How to love again.

Autism Schmaustism. He's still our son.

This is a blog celebrating our family. Our kids. Our life.

Wednesday, November 28, 2012

A Quick Update on Naveen

Just wanted to let everyone know that Naveen came home from the hospital late Saturday night.  He was diagnosed as having an ESBL strain of Klebsiella Pneumoniae.  It's a super bug and only responds to a few antibiotics. Fortunately, it's responding to the two that Naveen is currently taking.

He'll be on IV antibiotics until Dec 5 and I'm administering them every 8 hours. Let's see... does anyone really think I'm competent and organized enough to handle that?? I flushed his IV with blood thinner the first go around and forgot to clamp his IV shut, but he made it through in one piece. I've got it down pat now, although I feel completely and utterly sleep deprived. I'm usually in bed by 9, but have to stay up until 11 for his night dose and then get up at 5.15 am for his morning dose. And I'm such a light sleeper that I wake up every time Eli goes to the bathroom at 3 on the dot and can never go back to sleep.  The kids will tell you that I'm just a little cranky lately. 4 hours of sleep is detrimental not only to my health, but everyone's around me!

He's doing so much better now. Feels better. Acts better. The kicking and screaming upon waking is GONE. He was just miserable these last 5 weeks since his surgery.  I actually forgot how active he is when he's feeling well. He is 0-60 in a heartbeat. That boy... I tell ya... he keeps me on my toes!

Speaking of toes, this is what Naveen did when I asked him to go put his shoes on yesterday.

He's taken a liking to the box of rubber gloves that the home health agency sent us.  Isn't he cute??!! (I keep telling myself that over and over again as I clean up glasses of water that he's dumped on the floor, clean clothes that are dumped on the floor, books that are dumped on the floor... do you see a theme here?)

If you're the praying type, please keep Naveen in your prayers. His nephrologist is pretty sure this bacteria will come back and says it will damage his kidneys more and more each time it occurs. He sent Naveen home with a peripheral IV instead of a pic line because he wanted those veins to remain untouched in case his kidneys get damaged enough to need dialysis in the future.

Well, I had to make this quick because I'm about to help Noah make some chocolate chip banana bread. He's found a new hobby.. .baking!  This is a picture of the bread that Noah made yesterday (from a bread machine, but not a packet)...

I really do need to do a huge update on Noah. I'm way overdue. Part of it is because I don't know where to begin and part of it is because I'll have to admit that I've done jack all in regards to homeschooling this year. I like to blame it on the fact that it's hard to homeschool when you have a very active 3 year old in the home, but I know people who have 10 kids and still manage to get it all done. For the record, I am not one of those people!!  Wish I was, but the reality is that I'm a very poor manager of time.  And a queen of excuses. Did I tell y'all that I have an honorary PhD in Excuseology? It's a real degree, I swear!

But, anyway, hopefully I'll get a Noah update on here soon.  In the meantime, we've got some cooking to do!


Colista said...

Thanks for the update. I will be praying for Naveen- praying that nasty bacteria will stay away---sounds very stressful. :(:( I am wondering to myself if there is anything in the realm of naturopathy that he would benefit from to help ward off this bacteria---because you need one more thing to do, right? I am sure you get lots of unneeded advice, but I was just curious.
His duck feet crack me up! Where does he come up with this stuff? What a hoot he is. So glad he is feeling better, but hopefully he doesn't drive you crazy in the meantime.
Man. Noah is so beautiful. Er, handsome. Whatever.

Peter and Nancy said...

Wow, wow, wow. What a lot of stress and meds to handle -- so glad he's responding to the two antibiotics! And I sure will pray that the bacteria will disappear completely, with no kidney damage. And I'll pray for you, Leslie!!! For more sleep, especially. <3

Mummy J said...

I loved reading your post and to see how you are taking everything in stride. You are one amazing strong woman and I'll be praying for you and your sweet family. I will be praying extra hard for Naveen and that bug to stay away from his kidneys.