I originally started this blog a few years ago to chronicle Noah's daily struggles with autism. It was a dark time in my life - a time when I felt that things would never get better. It was a time when I felt that all my hopes and dreams for my son and for our family had died. In my efforts to help Noah recover from autism, I began a journey that inadvertently led me to rediscover myself. I learned how to laugh again. How to dream again. How to live again. How to love again.

Autism Schmaustism. He's still our son.

This is a blog celebrating our family. Our kids. Our life.

Sunday, September 29, 2013

A VERY long update

Never in my wildest dreams did I imagine that I would go 7 months without blogging. Honestly, it's been the last thing on my mind, and it wasn't until I received a comment the other day asking if I was blogging anywhere that it really occurred to me that I hadn't blogged since February.

Generally, when I don't blog for stretches at a time it's because we're going through a tough period. I learned long ago that it's really kind of depressing to read blogs when people are going through a rough period, and even though I wonder if other moms or families would be helped in knowing that maybe they're not the only ones going through struggles raising kids with special needs (especially as they enter the pre-teen years), it does serve as depressing reading.

Plus, and I've mentioned this before, I made a mistake of using my children's real names when I started this blog and I wish like anything that we had a bit of anonymity. Also, and this is a repeat, too, but things that I used to blog about that I could spin a funny story about..... having an embarrassing meltdown in public, or a sassy attitude or being terrified to enter any stores during the entire month of October because of all the Halloween decorations.... well, maybe I could spin a story about that when a child was four, but it's not so funny now that the child is 10. A bigger age comes with bigger issues, and when you're still dealing with issues that occurred 6 years ago and pile them on top of the new issues, well, that's a helluva lot of issues.

And homeschooling? Oh Sweet Jesus, come rescue me from this nightmare I've gotten myself into. Things are actually going really well with Nandi. She LOVES homeschooling. But we are still facing defiance and refusal and anger and massive mood swings with Eli.  I honestly don't know what to do. It seems so easy to say that public school is the answer, but, trust me, it's not. You just cannot even imagine. It would take two people to drag him into the school every morning and his anger, honestly, frightens me.  It's a volcano that's waiting to erupt, and I think everyone is safer with him at home. Even though it makes our home life very chaotic and unstable.

I think the reason I don't blog anymore is because, honestly, y'all know I can't write a short post. If I sit down to write, it all comes spilling out. It's therapeutic and cathartic, but it also blows the cover on the privacy that I feel my kids need. Yet, at the same time, I've bottled all this up, tried to act like everything's okay, but it's not. At some point, I will have to delete this blog and start over, but I don't know when.

Homeschooling is probably the thing that's on my mind the most. Unschooling would be so easy, but it would make me feel like I'm giving up. He has such learning issues... documented, tested, verified learning issues. I'm afraid he'd never learn. But the emotional toll that it's taken on me and the others is unhealthy. (Noah has gained over 20 pounds since I started homeschooling Nandi and Eli because he is getting zero attention these days and sits and spins tops all day long).

The thing is... people on the outside don't see this. They see a wonderful, charming, sweet, polite, loves Jesus, loves his siblings, "wish we had 100 just like him!" 10 year old little boy. And the good days? Oh, they're soooo good! We're all in good moods. I'm not hiding in the bathroom crying. Life is wonderful and I think, "We can do this! Life is so good!".  But on the bad days? Lord help us, they are BAD! We are walking on eggshells. Nothing gets done. I cry all day. Noah cries. And the guilt sets in. "I'm not enough."  "I'm failing them." "I can't do this They deserve better"  It drains me so much, emotionally, that I have nothing left to give, and sometimes, by 11 o'clock, I'm done for the day.

See why I don't blog much? This post is going to embarrass the crap out of me tomorrow morning.

There are some good things on the horizon. A new charity called "Health for Orphans" has taken a special interest in our kids and they brainmapped Nandi and Eli last week. There is a possibility that we'll be able to start Neurofeedback (NF)on both of them and I am praying that it works.  The charity is new and just received their nonprofit status, so they're still in the fundraising stage, but I'm hanging by a thread and a hope that NF will help.Nandi's brain waves showed a ton of increased activity in the frontal lobe area and resembled the brain waves of soldiers returning home from war. PTSD.  Hmmm, I wonder what MY brain waves would show if mapped? *smile*

We discovered that Naveen has a milk allergy and his chronic diarrhea has started to clear up.Now, if only we could work on his attitude! He has started to mimic Eli when he gets angry, but we're nipping that in the bud. This is the difference between a child who can control their behavior and a child who cannot. I truly believe that some of Eli's issues are birth related and due to negligence during the first 9 1/2 months of his life. Maybe some genetics, definitely some brain chemistry stuff going on. His brain mapping showed a Neuro Methylation issue. There's just a lot going on.

Naveen, though, despite his 4 year old little attitude, is a blessing. He's the funniest kid ever and has the cutest little smile. He is nowhere near ready to learn and I don't plan on homeschooling him for another year or two.

Nandi is doing so well. I was shocked at what her brain mapping revealed, but it does make sense. She decided to sit out of soccer this year, but we are thinking about 4H or Girl Scouts for her. She's game for anything. She has decided that she wants to be a house cleaner when she grows up. No, I'm not making that up. That's her goal.  Actually, she's an excellent cleaner and with her frugal skills, she'd probably end up doing better than all of us. She has the cleanest room in the house and is always ready and willing to do her chores. She's saving up her money for an Itouch and should have enough money after her birthday next month to get one.

 She'll be nine. Nine!

Noah is hitting puberty and we are so not prepared. Oh, the stuff I could blog about, but can't. Just imagine a child with severe autism going through puberty... going through alllllll the stuff other teenage stuff other boys go through, but has no self care skills and is still in diapers. We can laugh about it, but it has presented a whole new set of problems.

Noah is still our sweet, little (big!) boy, though. I have sorely neglected him the last 9 months - academically - and we need to start RPM again. There's not a quiet space in our whole house and I fantasize about closing off 1/4 of the garage to make a little school room with just a desk and a few supplies.  I still read to him and we finished 'Out of My Mind' a few months ago and we're in the middle of 'Wonder' right now. Both are amazing books for 5th-6th graders and I highly, highly, highly recommend them.  Also, we've started resuming daily walks (well, if everyone cooperates, we actually manage walking about 3x's a week).... and I'm pushing Noah in his stroller half the way and he walks the remaining 1/2 mile home. I wish we could walk longer, but Nandi can't walk long with her leg, so we do the best we can. Noah is slowly starting to lose some of the weight he gained. (He went from a size 8-10 to a size 14 in a matter of months).

Eli has become a Star Wars fanatic. Especially Angry Bird Star Wars. We have successfully passed the dinosaur stage. Whoo hoo! It only took 7 years! We bought a ton of Star Wars readers off Amazon and he is starting to read.... something we never thought we'd see. He still won't read a chapter book, but he's reading!  He is not too much on hobbies or activities, but we did manage to convince him to go to AWANAS and he likes it so far. He made some peg dolls and sold them to all my unsuspecting, elderly relatives (it's such a funny story) and raised $60 bucks to donate to Awanas.  I don't know if I should be proud that he conned money out of people living off social security, but I was a bit impressed with his gumption. He's also really good with Naveen (when they're not fighting!) and has decided that he will entertain him while I'm working with Nandi and Noah.... for a small daily fee.

As for me, after successfully giving up sugar and coffee for ages, I'm back to drinking my French Vanilla Cafe in order to survive. I've been solidly gluten free for 2 months now and my joints are better and I've gone two months without menstrual cramps (I'm the Queen of TMI). I was diagnosed with mild lupus in my early twenties and used to use a cane to get around, but things got better when I added meat into my diet and I was able to go off my meds. Lately, though, my joint pain returned and Sim was having to pry my fingers open each morning and I couldn't even raise my arms or get the lid off the orange juice. I was having to lay on the couch for hours at a time during June and July. I started yoga and that helped.... but I've slacked off now that the school year has started. Anyway, finally realized (after starting/stopping gluten for YEARS) that it was poisoning my body and I can officially say that I'm Gluten Free.  I can resist pizza... even on my worst emotional days, which is major. MAJOR.

Sim is continuing to work crazy hours. He's often called in 6-7 days a week and away for 12-14 hours at a time. I fantasize about moving closer to Dallas. (He commutes 1 1/2 hours to work each way). But, my parents are out here and they're my lifeline.  I have two close friends here, but one is moving next week (sob! sob! sob!) and the other has three little girls on the autism spectrum and is busy. I would die without my parents, but it might get to the point where we have to move to the city. I admit that I hated it here for ages, but the trees and scenery have saved me. Plus, if we lived in a proper neighborhood, I'm sure the cops would've been called on us 20 times by now with the meltdowns that occur on a nearly daily basis!

My parents watched the kids for a few days in August and Sim and I went to New Orleans for my 40th birthday. It's the first time we've been away without the kids since 2006. We drove up on a Sunday and came back on a Tuesday, but it was worth it. We needed that time alone so much. Also, being in New Orleans renewed my passion for reading and I spend any extra free time that I have (I try to get up an hour before the kids each morning) reading history and biography books. My two loves! It's been great getting to rediscover my love for something other than education or autism or bipolar or therapy methods, etc.

Right now, as I type this, Noah is in his room on his beanbag and the other three are in the living room watching "Good Luck Charlie." All is calm right now. It's drizzling with rain and the chaos and meltdowns of this morning have passed. Sim is at work and I'm going to attempt a new chapter of "Life of Fred" with Eli. (This math curriculum has been the BEST homeschool purchase I've made. I can't rave about it enough for right brain, non traditional learners.)

Sorry for the ramble, but this is what happens when I don't blog for 7 months.

Wish us luck and say a prayer, if you think about it. Would really appreciate it. Thanks.

Tuesday, February 26, 2013

We're Still Alive...

Oh my goodness... how on earth has it been 2 months since I last blogged? Someone warned me that when I started homeschooling that I could kiss my blog goodbye. She was right... I rarely have any free time to sit down and type anymore.  I construct all these elaborate blog posts in my head, but they never make it to the computer. And then before you know it, 2 months have passed by and you don't even know where to begin.

So, I'll try to start somewhere...

We officially started homeschooling at the beginning of January. The first week was heaven. The second week was hell. And the third week was the same. By the fourth week, things started to even out and we have started to find a rhythm.  It's NOTHING like I thought it would be and at the same time, it's everything I hoped it would be.

I think my biggest fear was that I would go crazy being around the kids all day.  And that's hard to admit because it just sounds so awful. But, if you want to know the truth, I was one of those moms that hated the weekends, looked forward to Monday mornings, and couldn't wait until her kids were old enough to ship off to Camp Wanatoka or Tawokoni or whatever it is way up north for three whole months in the summer.

It's not that I didn't love my kids, but I had a hard time dealing with their issues. And, believe, I already know that I have a ton of issues myself, so I'm not solely blaming my children's behavior for the way I was feeling. But the constant complaining and screaming and fighting and fears and anxieties and homework battles and insecurities just about drove me insane. I didn't know how to handle it and I was doing a pretty poor job of pretending.

But, despite those feelings, and as crazy as this sounds... because I know I probably just made myself sound like the worst parent ever... I did have a deep maternal instinct and love for my kids and I knew that homeschooling was the best option for them. Our family was going downhill... fast... and Sim and I both felt that bringing the kids home was the only solution that would save us and keep our family together. And I loved my kids enough to bring them home, even though I was terrified about what it was going to do to me. I mean, I knew it was the best thing for them, but I wasn't so sure it was the best thing for me.

So, we brought the kids home in January and the strangest thing happened.... after our rough patch, things started to settle down. And I started to realize that my kids are pretty cool. I mean, they're really, really funny. And they have the most creative ideas. And they're actually really sweet and kind and just generally awesome. And Nandi and Eli.... who actually hated each other... are best friends. They play together all the time. And the change in them is remarkable....

Eli's anxiety has almost disappeared. Not completely... I mean... that kid definitely has an anxiety issue.... but his behavior has completely changed now that he's not stressed out so much.  We used to complain that his teachers got the best of him and we got the leftovers, and that's pretty much how it was when he was in public school. He'd hold it together and then get home and explode and have huge meltdowns.  We still see them. I mean, he does not like school ( he has a ton of learning issues that make him feel "stupid" and he doesn't even want to try half the time), and it's definitely a battle. I can't lie about that. I'm slowly learning how to handle and preempt his almost daily explosions over schoolwork, but the rest of the time he's great. He is so good with Naveen.... it's been amazing to watch. And he tries to help Noah.... and he plays so well with Nandi. They still fight.... and sometimes I question myself over the decision to pull them out of school... but, for the most part, they're doing really well.

Nandi has really surprised me. We had been getting a lot of leftovers with her, too. In my last blog post, I wrote how she was so jealous of Naveen that she'd come home from school and just melt down..... screaming, pulling her hair, clawing at her chest. It was horrible. And that jealousy of Naveen is still there.... and we have had one or two episodes that just made my heart sink... but she's loves to do school work and is probably the hardest worker I've ever met. She is a homeschooling mom's dream. She wakes up, does her work, asks for more... I mean, it's nuts. A total change from Eli.  She even asked me today if she could go to "Chess Camp" this summer.  She's in piano and just started soccer and is already asking to join Girl Scouts and 4-H. She blows me away. She's totally game for anything.  Eli, on the other hand, wants to do absolutely nothing, but Nandi is a real trooper.  She does still have some issues with Naveen and we have to watch the two of them sometimes because we have seen some old sneaky habits crop up... The "accidentally" pinching or tripping or knocking over.  But, Naveen has fast become a little tattle-tale, so Nandi's not able to get away with much.  But despite all of this, the good outweighs the bad and we know that we definitely made the right decision for our family with homeschooling.  We're going slow... truthfully, we've only been doing Spelling, Reading, Writing, and Literature for the last 7 weeks.  We're just now introducing Math, and, most weeks, with all of our therapy and doctor's appointments, we're only managing 3-4 days of school a week.  So, we'll definitely have to do school year round in order to keep up, but we've seen way to many emotional gains to really worry about it right now.

As for Naveen and Noah... well, I'll have to do another blog to update about them. Otherwise, this one will never end!  Both are doing great, though, and I'm constantly aware of how much time I'm able to spend with the two of them. There's quite a bit of guilt going on with that... especially with Noah because his one on one attention time has been cut drastically, but we are making a valiant effort to improve his health, and with that, we're seeing some minor improvements. I finally got around to making my bone both! Cool and gross at the same time. And don't get me started on the fermented cod liver oil and raw liver shooters I've been taking.   I decided to take them first to see how they tasted before I tried them with Noah... and after taking them I realized that there's no way in H-E-double hockey sticks that I'd ever get them down Noah's throat.  But I did read that you can rub fermented cod liver oil on a child's butt and it will absorb just as well as if they take it orally. So, poor Noah's little behind smells like a can of sardines... but there's been some studies on fish oil provoking speech in children with apraxia... and, by golly, if Noah hasn't started babbling and saying a few one-off words.  Nothing consistent, but he's said a few words here and there and that's given us enough hope to continue making our house smell of rotten fish.  And if I can somehow grind that liver up and hide it in his veggie/rice concoction then maybe he might start reciting the entire alphabet. Who knows.  Anyway, practically all my time is spent either homeschooling or researching different types of healing foods and that's why I haven't been on here lately. (By the way, did you know that if you leave water kefir out to ferment too long that it turns to alcohol? Yeah. It might be a good idea to test it first before you give it to your kids....)

Okay, I've written way too much. And without pictures. I know! I've violated every blogger rule.  So, hopefully, it won't be two more months before I blog again. But, rest assured that we are doing great. We still have rough patches and we've quickly learned the truth of the motto, "It's a marathon, not a sprint".  And, well, we all have really high hopes for the future.  I know that homeschooling's not for everyone and that it looks different in every family, but if you're considering it then I think you should go for it. It just might turn out to be best thing you could do for your family.  It definitely saved ours...  =)

Monday, December 31, 2012

Out With the Old and In With the New (Homeschooling!)

I have started and restarted this post a million times. I started it being serious and I started it being funny and then I'd erase it each time because I didn't want to offend anyone... because the truth of the matter is this - when you talk about your educational decisions for your kids, some people are going to get offended. And I hate offending people or causing controversy or any sort of discomfort whatsoever. But here it is... we've decided to pull out Nandi and Eli from public school, and next week, we will start homeschooling them.

I'm going to be the first to admit that I'm a bit of an educational snob. I am extremely pro education. I love to read and I love to research and I love to think that my kids will go off and get advanced degrees and discover how to clone people and make robotic machines that will do all the laundry and fold it and put it away so I will never have to do it ever again.

I have high , if somewhat slightly unrealistic, hopes for my kids.

It never occurred to me that I would have kids with learning issues or emotional issues or health issues. I always assumed, from a very young age that any children I had would excel in school, join the debate team, graduate in the top 10% of their class, get a Bachelor's degree, join the Peace Corps, come back and do a one year Rhodes Scholarship to England and get their Master's degree, start a career and get a PhD at night while working on their career.

No, I'm not joking. Why do you ask?

I used to look down on homeschoolers. Not actual homeschoolers... you know, the ones who actually home school. But the ones whose moms made sure their daughters learned to cook and, oh my word, sew, because why on earth would you need to learn to do something like that when that's precisely why God invented tailors and old ladies? Why would you want to learn how to quilt when you can buy brand new duvets at Bed, Bath, and Beyond? And is learning how to make ten different types of breakfast casseroles really going to advance your career? Unless you run a restaurant?

There are moms out there whose sole goal for their daughters is to learn how to bake, budget, and raise a baby.  That's their goal. No college, no career. Just get married and raise a family and run a household.

There are moms out there whose sole goal for their sons is for them to grow up, get married, and get a job at the local water company or electric company or local plant.  No college. No world travel. Just get married and raise a family and provide for the household.

And, you know, I'm really ashamed to admit this, but I kind of looked down on that. Not the people themselves, but those goals. I've always said that I want more for my kids. I want more for my daughter. I want her to go to college and see the world and be anything she wants to be.

And then I had a daughter who has attachment problems. And learning issues. And who is so jealous of her little brother, who gets to stay home with me everyday, that at least 4 times a week, her jealously spirals into rage and anguish and she will stand in the middle of the living room floor screaming at the top of her lungs, and ripping off her clothes, and clawing at her chest, and pulling at her hair. And she doesn't know how to regulate. And she doesn't know how to calm down. Because in her mind.... her mind... I love him more and I will leave her one day and I will abandon her one day and she is not worthy.

That's when we started to question.... how can you possibly work on attachment if your child is away from you for 8 hours a day? And how can you work on attachment if that child is so consumed with feelings of jealousy and unworthiness that she sabotages every hour that she is home?

At what point does a child's emotional welfare trump a child's education??

We could send Nandi to school and she could learn to divide fractions and write essays and eventually graduate from high school, but is it worth it if she doesn't know how to establish and maintain relationships? If her feelings of worthlessness are so strong that she turns to the first boy that says she's pretty? If she tries to fit in by hanging out with the wrong crowd? By trying to get our attention, because in her mind any attention is better than no attention, by skipping school and failing?

I know it sounds crazy because she's only 8, but parents who've been in our situation know that these aren't crazy thoughts. These are realities for our children. We see things every day that would shock you. These are strong possibilities if true attachment is not made.

Nandi is so insecure that I can't even begin to explain it. She has no friends. Zero. None. And that's not an exaggeration. She does not know how to make friends, how to act around friends, or how to keep friends. She has an auditory processing disorder and a speech delay that makes communication very difficult. She's in second grade and has a reading level of 12. Despite being in  2 hours of pull out classes and tutoring... daily..she is failing reading. And then she comes home and takes it out on us.

At the same time, as much as she tries to push us away, I think she'd spend every minute of every day in my lap if she could.  She wants to be by me, lean on me, or sit on me every minute of the day. After two years of successfully sleeping in her own room, she has moved her mattress next to my side of the bed and sleeps there every single night. Sometimes she wakes up screaming that "The worries are on me! The worries are getting me! Get them off, Mommy. Help me!"  And my heart breaks and I wonder what her first three years were like and I know that she needs to be with me now.

And I think about those moms whose who are at home teaching their girls how to bake. I think about how they're teaching their daughters how to be good wives and mothers and I think that maybe I was a little too quick to judge. And I think that maybe they had the right idea all along. Because isn't togetherness and security and family really what it's all about?

Don't get me wrong. I'm going to teach Nandi how to do math and how to read. She'll learn all about science, and because I'm a history buff, she'll probably learn more history than she ever wanted to know. We'll do a proper curriculum and take tests at the end of each school year. But I also plan to teach her how to cook. And teach her how to do laundry and teach her how to look after a house.  Because my goals for her have changed. Because her history and her personality have necessitated this change. Because baking and budgeting and doing chores together means that we'll be spending time together and I think that's the one thing she wants and the one thing we need more than anything.

I hope she'll go to college someday. And I hope she'll join the Peace Corps someday. And I'm still holding out that maybe she'll invent that robot that will ensure I never have to do laundry again. But, above all, I hope she'll be able to find love someday. And keep that love. And have friends. Real, true friends. And I hope she'll be successful no matter what she chooses to do. And know that we love her and that she's worthy no matter what she chooses to do.

And I know it'll be hard. And to be honest, I'm scared to death. I'm actually more scared about homeschooling Eli than I am about Nandi. And about ignoring Noah. And about the huge big mess Naveen will create while we're doing our school work. The whole thing terrifies me. But I think it's the one thing that my kids need right now. And we don't have a lot of money. And we don't have a fancy house. And we don't have much of anything, really. But we have time. Lots of time.  So that's what 2013 is going to be about this year. Time and family and attachment and togetherness and love.

And possibly teaching my kids to learn to love math and science so they can invent that robot one day that will ensure I never have to do laundry ever again.

Friday, December 21, 2012

Merry Christmas From Our Family to Yours

Our family would like to wish all of you a very Merry Christmas and a Happy New Year!

May you get lots of kisses under the mistletoe, Nutella in your stocking, remember the reason for the season, and stay up to watch the ball drop.

We're ending this year with the flu (all of us!), lots of school meetings, tons o' school drama (more about that later!), and more medical bills than I care to count (another hospital stay for Naveen just last week!!).

But this year also brought our missing puzzle piece (Naveen!), new friends, old friends, the loving and continued support of our family, exciting travel, and lots and lots of laughs.

May we continue to be so blessed in 2013. Happy Happy Joy Joy and a big Ho Ho Ho!

From our family to yours, Meeeerrrry Christmas!

Wednesday, November 28, 2012

A Quick Update on Naveen

Just wanted to let everyone know that Naveen came home from the hospital late Saturday night.  He was diagnosed as having an ESBL strain of Klebsiella Pneumoniae.  It's a super bug and only responds to a few antibiotics. Fortunately, it's responding to the two that Naveen is currently taking.

He'll be on IV antibiotics until Dec 5 and I'm administering them every 8 hours. Let's see... does anyone really think I'm competent and organized enough to handle that?? I flushed his IV with blood thinner the first go around and forgot to clamp his IV shut, but he made it through in one piece. I've got it down pat now, although I feel completely and utterly sleep deprived. I'm usually in bed by 9, but have to stay up until 11 for his night dose and then get up at 5.15 am for his morning dose. And I'm such a light sleeper that I wake up every time Eli goes to the bathroom at 3 on the dot and can never go back to sleep.  The kids will tell you that I'm just a little cranky lately. 4 hours of sleep is detrimental not only to my health, but everyone's around me!

He's doing so much better now. Feels better. Acts better. The kicking and screaming upon waking is GONE. He was just miserable these last 5 weeks since his surgery.  I actually forgot how active he is when he's feeling well. He is 0-60 in a heartbeat. That boy... I tell ya... he keeps me on my toes!

Speaking of toes, this is what Naveen did when I asked him to go put his shoes on yesterday.

He's taken a liking to the box of rubber gloves that the home health agency sent us.  Isn't he cute??!! (I keep telling myself that over and over again as I clean up glasses of water that he's dumped on the floor, clean clothes that are dumped on the floor, books that are dumped on the floor... do you see a theme here?)

If you're the praying type, please keep Naveen in your prayers. His nephrologist is pretty sure this bacteria will come back and says it will damage his kidneys more and more each time it occurs. He sent Naveen home with a peripheral IV instead of a pic line because he wanted those veins to remain untouched in case his kidneys get damaged enough to need dialysis in the future.

Well, I had to make this quick because I'm about to help Noah make some chocolate chip banana bread. He's found a new hobby.. .baking!  This is a picture of the bread that Noah made yesterday (from a bread machine, but not a packet)...

I really do need to do a huge update on Noah. I'm way overdue. Part of it is because I don't know where to begin and part of it is because I'll have to admit that I've done jack all in regards to homeschooling this year. I like to blame it on the fact that it's hard to homeschool when you have a very active 3 year old in the home, but I know people who have 10 kids and still manage to get it all done. For the record, I am not one of those people!!  Wish I was, but the reality is that I'm a very poor manager of time.  And a queen of excuses. Did I tell y'all that I have an honorary PhD in Excuseology? It's a real degree, I swear!

But, anyway, hopefully I'll get a Noah update on here soon.  In the meantime, we've got some cooking to do!

Thursday, November 22, 2012

Naveen's First Thanksgiving

I think whether you're pregnant or in the midst of an adoption, you can't help but mark each holiday in terms of what will happen "next year".   "Next Christmas, she'll  be here." or "Next Easter he'll be here."  A year ago, as we were gathered with our family at my aunt's house, I was telling anyone who would listen, "Next Thanksgving, Naveen will be here!" and I imagined him sitting in my lap, all dressed in orange and brown (my favorite colors on my Indian babies), tasting pumpkin pie for the first time, and holding hands while we said grace.  Never in a million years did I imagine that he'd be spending his first Thanksgiving in the hospital.

He's doing fine. It's nothing too serious. He just caught some sort of a bacterial super bug that can only be treated with IV antibiotics. We should, hopefully, go home on Saturday or Sunday, with an IV in and a home nurse will stop by to give him his antibiotics for the next week or so.

This hospital stay is completely different than our stay last month. He's not on pain meds this time around, so he's completely lucid and he does NOT want to be here. No amount of Barney, bribing with Pringles, or watching the Disney channel will change his mind. He wants to go home! And in a way, I should be really glad about that. He has a home to go to. He has a family to go to. This sweet little boy wants to go home. Now!

Today, I'm going to be thankful that I'm able to be here with Naveen. I think about all of his hospital stays in India and I'm so thankful that he now has a Momma that he can hold onto and lean on and scream at that he " wants to go home. Now!" And this Momma is so thankful her little boy is home this year.

And as I look over at him, all huddled against me on the pull out couch, running a hot wheel up and down my arm, and asking to play a game.... I can't help but think to myself that this might actually be my best Thanksgiving ever.

And that we can't wait to go home.


May you all have a wonderful and peaceful Thanksgiving.

Monday, November 12, 2012

Getting Back on Track

Update - Oh my word! Never underestimate the power of 3 hours of homework a night to completely upset your whole schedule.  Soooo many things not getting done this week. We are REALLY struggling with Eli's learning issues and his homework. Everything makes sense now that we know what's going on and we're desperately trying to find a way to help him learn. I am really praying about homeschooling right now. Those who know me fear for me.. and my kids! haha. Our family dynamics are not the best for homeschooling. Each child would do good on their own, but all together.. all day long?  But I am spending several hours a day reteaching what they're learning in school AND I spend ALL my time trying to figure out ways to teach them in the way that they learn mess. It's a jumbled mess right now. Ideally, I'd like them in school so I can devote some time to Noah and Naveen, who don't get much attention when the other two come home from school. But at this point, they may end up failing and being held back next year. Decisions... Decision... Decisions...

Back when I was working, I had my daily routine down pat.  I'd get to work and make my one and only cup of coffee for the day and I'd hang around the microwave talking to my coworkers about what happened on last night's episode of Buffy the Vampire Slayer or Party of Five (am I dating myself here??) and then head to my office. Once there, I'd check my email and my voice mail and my inbox. I knew exactly what work needed to be done for the day, what meetings I had scheduled, what phone conferences I had to participate in. And, sure, sometimes things didn't go as planned. Sometimes, I'd have to meet with students or an angry parent, but life, for the most part, was running pretty smoothly.

That's something that hasn't been happening in the 9 years that I've been home. My one cup of coffee has increased to five or six. I stay in my sweats until 3pm, and basically feel that life is one big free fall and I'm walking in circles without really accomplishing anything.

I do my best when I have a schedule and a plan, and, lately, I feel that so much is being thrown at me that I'm in danger of just sitting on the couch all day and wondering how it got to be 5 o'clock so soon. So, today, at least, I've decided to make a schedule for the week. Not minute by minute or even hour by hour... just a list of things that need to get done, written out in one place, with no pressure to get it all accomplished today or even tomorrow. But having that list will help me see everything that needs attention and, hopefully, will help me prioritize things a bit better this week These are not the only things that need to be done, but things I need to pay special attention to...


Urologist - DONE!

Nephrologist  - DONE!

Chiropractor - DONE!

Brain Gym - DONE!

Occupational Therapy 2x  -DONE!

Noah's Stroller Fitting

Piano for Nandi - DONE!

Pediatrician for Naveen's UTI  - DONE!

Blood work for Naveen

Classmates Birthday Party (Nandi)

Around the House

Clean Bathrooms

Sweep 4x

15 minute kitchen clean-up before bed

Laundry - every day


Organize Laundry Room

Organize Nandi's clothes. Go through hand-me-downs and pass on the ones that are too small and box up the ones to grow into  - DONE!

The Kids

Work on the 5's multiplication tables with Eli  -DONE! (And ongoing.. huge drama!!)

Math homework with Nandi - DONE!

Spelling words for Nandi and Eli  on M,T,W, Th  - DONE! (Test is Thursday instead of Friday)

Try Lavender essential oil with Eli for anxiety  - DONE! (Forgot about his sensory issues involving smell. Oops! Must come up with something else...)

Finish the 3rd Percy Jackson book with Noah and start on A Wrinkle in Time   DONE!

Read to Naveen before bed each night

Play Zingo with Noah and Naveen 2x

Do puzzles with Naveen 5x

Do Noah's neurodevelopment exercises 5x (and have Mozart playing in the background while doing so and clove/orange/lemon essential oil mixture in the diffuser)

Read next Story of the World chapter to Noah

Finish Howliday Inn on CD during trips to appointment  DONE! Next up, A Celery Stalks at Midnight. (All Bunnicula books)

Do math with Noah at least 1x (Math is my weakness.. doing it at least once will be an improvement!)

Let Noah and Naveen play with the bean tubs at least 2x and shaving cream 2x

Make fingerpaint

Go for a walk with Naveen and Noah 2x by ourselves and 2x with Daddy

Give Elderberry extract to Nandi and Noah

Clip nails for all 4 kids - DONE!

For Me

Make green juice (head of romaine, 4 cups of spinach, kale, one cucumber, handful of parsley, slice of ginger, and tsp of cayenne pepper) 3 x

Drink apple cider/honey tea (2tsp of Bragg's Apple Cider + 2 tsp of honey in 8oz of water) 5x

Errands/Misc Things to Do

Drop off copy of learning disability testing to school  - DONE!

Make bone broth

Teach Nandi how to make Congo Squares (not healthy at all, but her favorite dessert and handy to eat in the car this week)

Write a Thank You note  DONE!

Complete Naveen's 1st CARA report and mail off to Holt

Send birthday present to niece Ffion in England  DONE!

Buy birthday present for Nandi's friend

Pick up raw milk from local Mennonite Farm  - DONE!


GAPS diet

Diane Craft (for learning disabilities)

Pocket camera for Nandi's Christmas

Making homemade cough syrup (currently looking at this onion/honey mixture - Nandi is our Cough Queen)

We have such a busy week this week that I'm not even sure we can get it all done, but writing it all out makes it seem much less intimidating and makes my head seem much less cluttered!

I wanted to thank everyone for the kind comments on my last post. You know.. the one where I had a mental breakdown on my blog?? Thanks for the sweet words and suggestions (Heather, you rock!!).  And to Anonymous, who suggested that maybe "Gotcha Day" was offensive to my kids... I didn't take offense at all to your suggestion... and please don't worry... I didn't think you were rude at all. Thanks for the input. Because I'm an over researcher, I'd heard about this before and we sit down each "Gotcha Day" and talk about it with the kids. Right now, they're totally fine with the term because it's the day we "got them", but we'll change it if/when they want. The important thing is to make sure the kids feel comfortable... and to celebrate the day that we all became a family.

I'm off to print off my to-do list and get busy! Have a good week!