I originally started this blog a few years ago to chronicle Noah's daily struggles with autism. It was a dark time in my life - a time when I felt that things would never get better. It was a time when I felt that all my hopes and dreams for my son and for our family had died. In my efforts to help Noah recover from autism, I began a journey that inadvertently led me to rediscover myself. I learned how to laugh again. How to dream again. How to live again. How to love again.

Autism Schmaustism. He's still our son.

This is a blog celebrating our family. Our kids. Our life.

Thursday, June 29, 2006

A Long Day

Well, I can tell it will be a long day. Noah's been up since 4:00 am. I just don't get it. He didn't fall asleep until around 10:45 - aren't kids supposed to sleep for more than 5 hours a night? It's de ja vu all over again. Noah fell into this pattern when he was a baby and it lasted nightly until he was about 20 months - once we removed soy and corn from his diet. He would still have sleep issues about 4 times a week, but at least I got reprieve the days he would sleep a bit longer.

I really don't know what causes his sleep issues. And if I don't know, then how can I help him? And as a mom, it's just awful when you can't help your own child. That feeling of helplessness just gets you right to the core.

We went to Noah's chiropracter on Tuesday and she used a BioFeedback device on him. The next day, he was sluggish and out of it. Today, he's been seeking lots of sensory stimulation. He woke up shrieking and squealing and turning circles. He's been stimming like crazy - spinning the wheels of his tractor and holding them to his mouth. He's been running his fingers across the textured TV cabinet. He's been waving his fingers to the side of his face and looking at them with his peripheal vision. I mean, we haven't seen this in a while.

Part of me wonders if his steroids are building up in his body and causing problems. His dermatologist's nurse said for him to not go longer than two weeks because steroids can cause problems. But every time we stop, he ends up scratching like crazy and his skin gets infected and the lesions spread. He's been on the steroids for about 9 weeks now. The max he can go without them is two days. We try to put the steroids on in the morning and Vitamin E oil on at night. At least he doesn't wake up scratching anymore. That was a horrible time period I don't want to relive!

But I can't help but think that if you give steroids to a child that can't detox... what happens?

We know that Noah can't tolerate too much of anything. Even foods tend to build up in his system. He doesn't have outright allergies to most foods (except we do see reactions to peanut butter and potatoes within a few hours), but if you give him a food over and over, he starts to react. Like it builds up in his system and causes problems. It's so strange.

I can't wait until we go to TN!! One week and 6 days until we leave. It's going to be so great to have Noah's practitioners right there. Dr. Foley will be able to tell what's going on and correct it. And then, we'll go straight to Internal Balance where he'll do all of his therapies. It's just such a good combo. He does so well there! And he never has trouble sleeping, either. I just can't even begin to describe how excited I am to spend three months there. I am praying that Noah progresses. He's such a sweet, smart little boy. I know he's inside that body of his - we just have to help him break through. And I know he wants to, too. I really do. I can see it sometimes - sometimes when I look at him and we lock eyes and just for a fleeting second I get to see the real little boy inside him. And it's only a second, but it seems like we have so many silent conversations in that second - like a lifetime has passed. And I know he's in there. And I know he wants to come out. And I just can't give up. You know? I can't give up on him.

Noah's Mom

Thursday, June 22, 2006

Our First Post!

Wow! I can't believe that I finally created our own blog. I feel so high-tech! :-) I am very unsavvy when it comes to the computer, so it feels good to finally get this thing accomplished.

We've been trying to get a website and blog going for sometime. We are almost finished with the website and will send it to our web designer (thanks Mario!) this week. Hopefully, it'll be up in a few weeks and you can all check it out. It basically tells Noah's story and his journey through autism - from regressing into autism at 15 months old, to doing ABA and Biomedical therapies, to regressing again at the age of 3, to finally finding a treatment protocol that works and where we are today. It also details why we're trying to raise money to continue his new protocol and why we're so desperate for Noah to make progress. The website will be located at www.recoveringnoah.com - so be on the lookout for it!

Well, I'm really excited about the upcoming website and about starting this blog. Anyone who knows me knows that my emails are generally novels, so you can only imagine what these blog posts will be like!

I'm really excited to share Noah's daily progressions with all of our friends and family. And for those of you who are new to us, I can't wait for you to find out about our sweet, handsome, little Noah. I'm sure you'll also get to discover the many adventures of our loveable 2 year old son, Eli, who is destined to became a famous entertainer someday - so remember his name! He'll be coming to a comedy club near you around 2026. :-)

Thanks for joining us on this journey to the Road of Recovery. It's sure to be full of ups and downs and I know there are rocky roads ahead - just as there have been for the last 4 years - but we're still holding on until we reach our final destination.

Noah's Mom